ER
At a glance
Registered since
2024
Senate LDA system
Clients
4
last 3 years
Filings
12
15 agencies contacted
Activity
filings by quarter
Works on
Specific issues
Blood and plasma safety and awareness Bleeding disorders awareness Securing Equal Access to Research, Care, and Health (SEARCH) Act Creating Hope Reauthorization Act of 2024 (HR 7384) Prohibition on Creditors and Consumer Reporting Agencies Concerning Medical Information (Regulation V) (CFPB-2024- 0023)
FY25 House and Senate Labor-HHS Appropriations bills
Hemophilia research, prevention, surveillance and service programs and issues H.R. 3503/S. 1701 - NIH Clinical Trial Diversity Act Letter in response to Congressional Framework on Reforming the National Institutes of Health Letter in response to FDA Draft Guidance on Diversity Action Plans
Implementation of the Affordable Care Act The HELP Copays Act (HR 830) Coverage of hemophilia treatments and services in private insurance plans, including the alternative funding model Policies related to copay accumulator adjustor and maximizer programs Issues related to 1332 state innovation waivers H.J. Res. 181, Congressional Review Act resolution to stop the Biden-Harris rule limiting access to Association Health Plans (AHPs) Healthcare Affordability Act of 2024 (H.R. 9774 / S. 5194) AIMED Alliance Citizens Petition re drug importation and alternative payment models
Issues related to hemophilia treatments, specialty pharmacies and the 340B drug purchasing program
Reimbursement for hemophilia services and treatments in Medicare Reimbursement for hemophilia services and treatments in Medicaid Issues related to 1115 Waivers in Medicaid Preserving and expanding access to Medicaid Comments in response to CY 2025 Medicare Physician Fee Schedule Comments in response to CY 2025 Medicare HOPPS proposed rule
Clients
Filing history
NATIONAL BLEEDING DISORDER FOUNDATION (FKA NATIONAL HEMOPHILIA FOUNDATION)
THE HEMOPHILIA ALLIANCE
SICKLE CELL DISEASE ASSOCIATION OF AMERICA
NATIONAL ASSOCIATION OF EPILEPSY CENTERS
NATIONAL ASSOCIATION OF EPILEPSY CENTERS
SICKLE CELL DISEASE ASSOCIATION OF AMERICA
NATIONAL BLEEDING DISORDER FOUNDATION (FKA NATIONAL HEMOPHILIA FOUNDATION)
THE HEMOPHILIA ALLIANCE
NATIONAL BLEEDING DISORDER FOUNDATION (FKA NATIONAL HEMOPHILIA FOUNDATION)
THE HEMOPHILIA ALLIANCE
NATIONAL ASSOCIATION OF EPILEPSY CENTERS
SICKLE CELL DISEASE ASSOCIATION OF AMERICA