SICKLE CELL DISEASE ASSOCIATION OF AMERICA

CDCs Sickle Cell Disease Data Collection Program work with community-based organizations

Engagement with the Center for Medicare and Medicaid Innovation on the Cell & Gene Therapy Access Model Sickle Cell Disease Comprehensive Care Act (H.R. 7432) CMSs Office of Minority Health Sickle Cell Disease Action Plan

Funding for federal sickle cell disease programs FY25 House and Senate Labor-HHS Appropriations bills

Policies related to the orphan drug provision in the Inflation Reduction Act

Sickle Cell Care Expansion Act (H.R. 3100/S.1423) Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023 (H.R. 3884/S. 1852) Sickle Cell Disease Treatment Centers Act (not yet introduced) Policies related to the social security disability programs, including letter to SSA seeking the review of the the disability criteria for sickle cell disease