HA
THE HEMOPHILIA ALLIANCE
Organization · PA
Hires government relations
Nonprofit membership organization for federally-funded hemophilia treatment centers
Who they hire
What they lobby on
Affordable Care Act implementation Coverage of hemophilia treatments and services in private insurance plans Policies related to co-pay accumulators, including The HELP Copays Act (HR 830/S.1375) Private insurance policies that discriminate coverage for high cost drugs and use of patient assistance programs, also known as the (Alternative Payment Model) Letter to the Committee on Education and the Workforce Request for Information on Employer-Sponsored Insurance and Employee Retirement Income Security Act (ERISA)
Funding for federal hemophilia programs
Issues related to participation in the 340B Drug Discount Program HR 3290, 340B Transparency bill SUSTAIN 340B ACT - Draft Senate 340B reform legislation HR 8574 - 340B ACCESS Act Polices related to PBMs and drug cost transparency
Issues related to reimbursement for hemophilia services and treatments in Medicare Issues related to reimbursement for hemophilia services and treatments in Medicaid Meeting with CMS HR 3561 Section related to Medicaid transparency and drug pricing Comments RE: Notice of Benefit and Payment Parameters for 2025 Proposed Rule (CMS-9895-P).
Affordable Care Act implementation Coverage of hemophilia treatments and services in private insurance plans, including alternative funding model Policies related to co-pay accumulators, including The HELP Copays Act (HR 830/S.1375) Private insurance policies that discriminate coverage for high cost drugs and use of patient assistance programs, also known as the (Alternative Payment Model) Letter to the Committee on Education and the Workforce Request for Information on Employer-Sponsored Insurance and Employee Retirement Income Security Act (ERISA)