GENOMIC ANSWERS FOR CHILDRENS HEALTH ALLIANCE (GACHA)
SAVE RARE TREATMENTS TASK FORCE
SAVE RARE TREATMENTS TASK FORCE
NA
The past 12 months
Clients
2
past 12 months
Filings
3
past 12 months
Agencies contacted
HOUSE OF REPRESENTATIVESSENATECenters For Medicare and Medicaid Services (CMS)Health & Human Services, Dept of (HHS)
Specific issues
Work with Congress and the Administration to ensure Medicaid coverage of genomic sequencing for children with suspected rare diseases, genetic disorders, and undiagnosed conditions.
Work with Congress and the Administration to ensure that the Orphan Drug Exclusion from eligibility for negotiation under the Medicare Drug Price Negotiation Program allows products to remain excluded so long as their FDA approved uses are exclusively for rare diseases. Reauthorization of the Pediatric Rare Disease Priority Review Voucher Program. Most Favored Nation (MFN) models and international reference pricing, including GLOBE and GUARD
Clients
Sources
This profile is built from the public record: filings in the U.S. Senate Lobbying Disclosure Act system. lda.senate.gov ↗