SR
SAVE RARE TREATMENTS TASK FORCE
Organization · DC
Hires government relations
Dedicated to restoring the spirit of R&D incentives in the Orphan Drug Act.
Who they hire
What they lobby on
Work with Congress and the Administration to ensure that the Orphan Drug Exclusion from eligibility for negotiation under the Medicare Drug Price Negotiation Program allows products to remain excluded so long as their FDA approved uses are exclusively for rare diseases.