MEGAN PEREZ BURKE

Advocate for NIH research funding for dysautonomia disorders, specifically Postural Orthostatic Tachycardia Syndrome (POTS) and funding to examine the correlation between POTS and Long COVID. Supporting establishment of an infection associated chronic conditions office at the NIH to coordinate research. Asking for continued support for the Autonomic Medicine Section at the NIH.

Advocating for funding for (1) a public awareness and provider education program at the CDC on POTS and similar forms of dysautonomia, (2) an infection associated chronic conditions office at the NIH to coordinate research, and (3) funding for research to examine the correlation between POTS and Long COVID.

Advocating for policies to address access to patient care, including maintaining and increasing autonomic fellowships.

Advocating for expanded and equal access of telehealth use in healthcare -- Creating Opportunities Now for Necessary and Effective Care Technologies (CONNECT) for Health Act. Medicare Coverage of Innovative Technology (MCIT) - H.R. 1691, the Ensuring Patient Access to Critical Breakthrough Products Act. EtO Emissions Standards. PFAS regulation. Artificial intelligence regulation in healthcare, and the broader government.

Advocating for expanded and equal access of telehealth use in healthcare Medicare Coverage of Innovative Technology (MCIT) - H.R. 1691, the Ensuring Patient Access to Critical Breakthrough Products Act.

S. 866: The American Innovation and Jobs Act H.R. 2673: The American Innovation and R&D Competitiveness Act of 2023

NATIONAL DOWN SYNDROME SOCIETY

SEATTLE CHILDREN'S HOSPITAL RESEARCH AND FOUNDATION

AMERICAN ASSOCIATION FOR HOMECARE

DYSAUTONOMIA INTERNATIONAL

MEDICAL ALLEY ASSOCIATION

NORTH CAROLINA HEALTHCARE ASSOCIATION

NORTH CAROLINA HEALTHCARE ASSOCIATION

NORTH CAROLINA HEALTHCARE ASSOCIATION

AMERICAN ASSOCIATION FOR HOMECARE

DYSAUTONOMIA INTERNATIONAL

SEATTLE CHILDREN'S HOSPITAL RESEARCH AND FOUNDATION

NATIONAL DOWN SYNDROME SOCIETY