DI
DYSAUTONOMIA INTERNATIONAL
Organization · NY
Hires government relations
Non-profit seeks to improve the lives of individuals living with autonomic nervous system
Who they hire
What they lobby on
Advocate for NIH research funding for dysautonomia disorders, specifically Postural Orthostatic Tachycardia Syndrome (POTS) and funding to examine the correlation between POTS and Long COVID. Supporting establishment of an infection associated chronic conditions office at the NIH to coordinate research. Asking for continued support for the Autonomic Medicine Section at the NIH.
Advocating for funding for (1) a public awareness and provider education program at the CDC on POTS and similar forms of dysautonomia, (2) an infection associated chronic conditions office at the NIH to coordinate research, and (3) funding for research to examine the correlation between POTS and Long COVID.
Advocating for policies to address access to patient care, including maintaining and increasing autonomic fellowships.