VG
VICTORIA GEMME
NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD) · Washington, DC · registered since 2025
Registered · LDAActive
At a glance
Registered since
2025
Senate LDA system
Clients
1
last 3 years
Filings
1
5 agencies contacted
Activity
filings by quarter
Works on
Specific issues
Appropriations impacting patients with rare diseases. National Institutes of Health (NIH) NCATS Appropriations.
Medicare / Medicaid issues impacting patients with rare diseases. Inflation Reduction Act Implementation.
Rare Disease Initiatives. Affordable Care Act (ACA) Issues and Enhancements. Telehealth. Priority Review Voucher Reauthorization. Accelerated Approval. Newborn Screening.
Clients
Filing history
NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)