NATIONAL ORGANIZATION FOR RARE DISORDERS INC (NORD)
MB
MICHAEL BEARD
NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD) · Washington, DC
Registered · LDAActive
The past 12 months
Clients
1
past 12 months
Filings
1
past 12 months
Agencies contacted
HOUSE OF REPRESENTATIVESHealth & Human Services, Dept of (HHS)SENATE
Specific issues
Appropriations impacting patients with rare diseases. National Institutes of Health (NIH) NCATS Appropriations.
Medicare / Medicaid issues impacting patients with rare diseases.
Pharmaceutical issues impacting patients with rare diseases. Orphan Drug Act. Prescription Drug User Fee Act (PDUFA) Reauthorization. User Fee Agreements.
Rare Disease Initiatives. Newborn Screening. Genetic Testing Access. Medical Nutrition Equity Act. Medical Foods and Formulas Act. Orphan Drug Act.
Clients
Sources
This profile is built from the public record: filings in the U.S. Senate Lobbying Disclosure Act system. lda.senate.gov ↗
Recent filings1
lda.gov →