MUSCULAR DYSTROPHY ASSOCIATION, INC.

Advocated for stronger protections of individuals with disabilities when engaging with TSA Submitted coalition comments to DOT on the comment deadline extension on their proposed wheelchair users accessible air travel rule Advocated for the final passage of the FAA reauthorization Filed joint and individual comments on DOTs proposed rule on air travel accessibility

Encouraged action on telehealth legislation to the Energy and Commerce Committee Supported H.R. 7623, the Telehealth Modernization Act of 2024 Supported H.R. 7858, Telehealth Enhancement for Mental Health Act and the Telehealth Modernization Act: Supported HHSs final rule on section 1557 of the ACA Joined Coalition Comments on 2026 Notice of Benefit and Payment Parameters (6.7.24) Joined coalition comments on Medicare Payment Plans Joined Coalition Comments to CMS in Response to RFI on Medicare Advantage Data Supported H.R. 7383, Retaining Access and Restoring Exclusivity (RARE) Act Supported H.R. 7384, Creating Hope Reauthorization Act of 2024 Supported the amended Give Kids a Chance Act Supported the introduction of legislation that increases access to genetic testing and genetic counselors Advocated for provisions addressing problems within the pharmacy benefit manager industry Supported the introduction of legislation that amends the anti-kickback statute to allow companies to cover the costs of traveling to obtain therapies

Encouraged action on telehealth legislation to the Energy and Commerce Committee Supported H.R. 7623, the Telehealth Modernization Act of 2024 Supported H.R. 7858, Telehealth Enhancement for Mental Health Act and the Telehealth Modernization Act: Supported HHSs final rule on section 1557 of the ACA Joined Coalition Comments on 2026 Notice of Benefit and Payment Parameters (6.7.24) Joined coalition comments on Medicare Payment Plans Supported the ALS Better Care Act Joined Coalition Comments to CMS in Response to RFI on Medicare Advantage Data Joined Coalition Comments on Pending National Coverage Analysis for Standing Systems in Power Wheelchairs Provided comments to Energy and Commerce Committee on Medicaid access Advocated for the protection of the Medicaid program to the White House and Congress Supported H.R. 4758, Accelerating Kids Access to Care Act Supported the introduction of legislation that increases access to genetic testing and genetic counselors Supported the Access to Genetic Counseling Services Act Advocated for provisions addressing problems within the pharmacy benefit manager industry

Joined Coalition Comments on SNAP in House Farm Bill Reauthorization

Joined Coalition Comments to DOJ on Accessible Voting (5.30.24)