LOWE SYNDROME ASSOCIATION

FY24 appropriations request through the Senate Appropriations Labor, Health & Human Services Sub Committee. The request sought would provide funding to modernize patient database, patient registry (opt-in only) as well as funding for modern IT infrastructure equipment.

FY25 appropriations request through the House & Senate Appropriations Labor, Health & Human Services Sub Committee. The request sought would provide funding to modernize patient database, patient registry (opt-in only).