CYSTIC FIBROSIS FOUNDATION

Expanding access to Medicaid and Medicare and ensuring it supports individuals living with CF.

HCR - Health insurance access and treatment needs of persons living with cystic fibrosis related to Medicaid and the Affordable Care Act (P.L.111-148). Highlighting the patient voice during discussions about reforming policies impacting Prescription Benefit Managers (PBM). Supporting Funding for the National Institutes of Health (NIH) research and the Food and Drug Administration that benefits people with cystic fibrosis. Working to see enactment of the PASTEUR Act. Highlighting the importance of FDA policies on patients with rare diseases.